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The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers.

Rowbotham, Nicola J and Smith, Sherie and Leighton, Paul A and Rayner, Oli C and Gathercole, Katie and Elliott, Zoe C and Nash, Edward F and Daniels, Tracey and Duff, Alistair J A and Collins, Sarah and Chandran, Suja and Peaple, Ursula and Hurley, Matthew N and Brownlee, Keith and Smyth, Alan R (2017) The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers. Thorax. ISSN 1468-3296. This article is available to all HEFT staff and students via ASK HEFT Discovery tool http://tinyurl.com/z795c8c using their HEFT Athens Login.

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Official URL: http://thorax.bmj.com/content/early/2017/08/04/tho...

Abstract

There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on 10 research priorities which will be attractive to funders.

Item Type: Article
Additional Information: This article is available to all HEFT staff and students via ASK HEFT Discovery tool http://tinyurl.com/z795c8c using their HEFT Athens Login.
Subjects: WF Respiratory system. Respiratory medicine
Divisions: Planned IP Care > Respiratory Medicine
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Depositing User: Mr Philip O'Reilly
Date Deposited: 27 Nov 2017 15:38
Last Modified: 27 Nov 2017 15:38
URI: http://www.repository.heartofengland.nhs.uk/id/eprint/1536

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