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Establishing and Prioritising Research Questions for the Treatment of Alopecia Areata: The Alopecia Areata Priority Setting Partnership.

Macbeth, A E and Tomlinson, J and Messenger, A G and Moore-Millar, K and Michaelides, C and Shipman, A R and Kassim, J M and Brockley, J R and Szczecinska, W and Farrant, P and Robinson, R and Rodgers, J and Chambers, J and Upadhyaya, S and Harries, M (2016) Establishing and Prioritising Research Questions for the Treatment of Alopecia Areata: The Alopecia Areata Priority Setting Partnership. The British journal of dermatology. ISSN 1365-2133. This article is available to all HEFT staff and students via http://tinyurl.com/z795c8c by using their HEFT Athens login IDs

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Official URL: http://onlinelibrary.wiley.com/doi/10.1111/bjd.150...

Abstract

BACKGROUND

Alopecia areata is a common hair loss disorder that results in patchy to complete hair loss. Many uncertainties exist around the most effective treatments for this condition.

OBJECTIVES

To identify uncertainties in alopecia areata management and treatment that are important to both service users (people with hair loss, carers and relatives) and healthcare professionals.

METHODS

An alopecia areata priority setting partnership was established between patients, their carers and relatives, and healthcare professionals to identify the most important uncertainties in alopecia areata. The methodology of the James Lind Alliance was followed to ensure a balanced, inclusive and transparent process.

RESULTS

In total 2747 treatment uncertainties were submitted by 912 participants, of which 1012 uncertainties relating to alopecia areata (and variants) were analyzed. Questions were combined into "indicative uncertainties" following a structured format. A series of ranking exercises further reduced this list to a top 25 that were taken to a final prioritization workshop where the top 10 priorities were agreed.

CONCLUSIONS

We present the top 10 research priorities for alopecia areata to guide researchers and funding bodies to support studies important to both patients and clinicians. This article is protected by copyright. All rights reserved.

Item Type: Article
Additional Information: This article is available to all HEFT staff and students via http://tinyurl.com/z795c8c by using their HEFT Athens login IDs
Subjects: WR Skin. Dermatology
Divisions: Ambulatory Care > Dermatology
Related URLs:
Depositing User: Mrs Caroline Tranter
Date Deposited: 24 Feb 2017 10:21
Last Modified: 24 Feb 2017 10:21
URI: http://www.repository.heartofengland.nhs.uk/id/eprint/1203

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